Support while waiting for a Memory Assessment

Next Steps helps you to find the right support, at the right time, while waiting for your memory assessment appointment.

Here you can find information about what to expect at your memory assessment and organisations who can help, including steps you can take right now.

https://www.nextsteps.org.uk

Support – National

Dementia UK

Dementia UK is the only specialist dementia nursing charity that is there for the whole family, working towards a day when no one has to face dementia alone. Our specialist nurses, known as Admiral Nurses, provide life-changing advice and support, to anyone affected by dementia, whenever it is needed.

There are some Admiral Nurses within Hampshire. One team, funded by Royal British Legion is available for all veterans including those who have completed a minimum of one day National Service. There are also some nurses linked to GP surgeries in Havant and Waterlooville and Winchester.

 Anyone in Hampshire affected by dementia can get support via the Dementia UK helpline which is staffed by Admiral Nurses. The Dementia UK website also has a lot of information and fact sheets.

https://www.dementiauk.org

The Young Dementia Network – hosted by Dementia UK

Dementia is described as ‘young onset’ when symptoms develop before the age of 65. The Young Dementia Network is a collaborative network, an influencing community, seeking to improve lives through campaigning and empowering people with knowledge and information. This is an online community of people living with young onset dementia, their family and friends, as well as professionals working in the health and social care and voluntary sector.

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Alzheimer’s Society

The largest Dementia charity in the UK is Alzheimer’s Society. The Society can support via their helpline. They also have a lot of information and fact sheets on their website:

https://www.alzheimers.org.uk/

Rare Dementia Support

Rare Dementia Support (RDS) is a world-leading, UK-based support service led by the UCL Dementia Research Centre.

RDS supports people affected by 7 of the rare dementias, including carers and bereaved carers. These are: familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA), primary progressive aphasia (PPA), Lewy body dementia (LBD) and young-onset Alzheimer’s disease (YOAD).

https://www.ucl.ac.uk/drc/rare-dementia-support

Innovations in Dementia

Innovations in Dementia is a not-for-profit Community Interest Company (CIC). People with dementia are at the heart and start of all our work. We promote a positive but realistic view of dementia, demonstrating that, although it is life changing, it does not have to be life ending. We support people with dementia to live with hope and keep control of their lives.

Their website includes useful resources including technology guides to help people with dementia use technology such as zoom.

http://www.innovationsindementia.org.uk/

Dementia Adventure

Their work aims to enable people living with dementia to get outdoors, connect with nature, themselves and their community, and keep a sense of adventure in their lives – whatever ‘adventure’ may mean to the individual.

Dementia Adventure run small group holidays across the UK for people affected by dementia.

They also run free online courses for people affected by dementia to help increasing understanding of the condition, and to give them confidence to get their loved ones out into nature.

There are a lot of resources on their website.

https://dementiaadventure.org/

Dementia Carers Count

They provide free courses designed and delivered by healthcare professionals, that will help you develop skills and build confidence to navigate the highs and lows. Learning how to make your life manageable and maintain your own health and well-being is vital when you’re caring for someone with dementia. They will give you practical tips that you can use every day.

https://dementiacarers.org.uk/

TIDE

Tide works side by side with carers to ensure that their voices are heard.  They have developed a series of online events that are designed to help you on your caring journey. From understanding your own emotional well-being to improving your confidence in advocating for your own needs and the needs of the person you care for.

https://www.tide.uk.net

Online Resources for People affected by Dementia

The Living with Dementia Toolkit

The Living with Dementia Toolkit for people with dementia and their carers is a set of resources is based on research, and the expert experiences of people with dementia and their carers.

These resources are here to:

• give you hopefor the future
• inspireyou through examples of real-life experiences
• offer ideasto help you live your life as you choose

 www.livingwithdementiatoolkit.org.uk

Support – Hampshire

Every person within Hampshire should be referred to the Dementia Advisor Service run by

The Princess Royal Trust for Carers in Hampshire

The Princess Royal Trust for Carers in Hampshire holds the contract within Hampshire to create Emergency Plans for carers.

Their team will provide you with support to discuss develop and implement an emergency plan. Up to 48 hours care may be available for the person you care for in the event of an emergency.

https://carercentre.com/emergency_planning